GNEM

Auto Added by WPeMatico

I Document The Progression Of My Rare Disease In Heartbreaking Illustrations

I Document The Progression Of My Rare Disease In Heartbreaking Illustrations

#Illustration, Art, art mimics life, disability, disabled, full-page, GNEM, HIBM, Homepage featured, illustrations, Kam, Kam Redlawsk, orphan disease, rare Disease, wheelchair
At age 20 I set out to complete an Industrial Design Bachelors degree. At the same time I began experiencing mysterious physical symptoms, symptoms that would lead me to an unimaginable future. I went from kicking soccer balls, running and leading an active life to making use of leg braces, canes and today a full-time wheelchair. After 5 years of searching for a name for this uninvited stumbling block, I would learn I had an extremely rare muscle deterioration genetic condition called HIBM (today it’s called GNEM) which could take my once active body to quadriplegic state. This rare condition affects one to three thousand people worldwide. My condition is known to the medical world as an “orphan disease” which is ironic since I was born an orphan in South Korea. All the doctors told me the